2014 NADRC: The Alzheimer’s Voice: Person-Centered and Person-Directed Dementia Care

2014 NADRC:
Report: The Alzheimer’s Voice: Person-Centered and Person-Directed Dementia Care

Research suggests that many families and service providers do not adequately incorporate the voice of people with AD into the care planning and decision-making process. Too often it is assumed that people with dementia cannot contribute to these decisions and they are excluded from the discussion or their perspectives are not taken into account, even though the decisions are about them and affect them. A number of tools are available to assess the decision-making capacity of individuals with dementia and to assess the degree to which individuals with dementia participate in the decisions that affect them. In addition, tools are available to assess the person-centeredness of the care process and outcomes. To better serve people with dementia and their families, it is important that the long-term services and supports system find better ways to incorporate the goals, values, and preferences of people with dementia into the decision-making process. People with dementia are, first and foremost, people, and their right to control their own lives needs to be respected to the extent practicable.

Also: Decision Making: autonomy, capacity, care planning, competency, financial capacity, informed consent, shared decision-making, care management;