Webinars and Training

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2018 NADRC:
Evaluating Dementia Services and Supports: Instrument Resource List

The NADRC developed the Evaluating Dementia Services and Supports: Instrument Resource List as a resource for dementia service providers, to help them identify appropriate and well-researched measures in support of their program evaluation plans. Choosing existing measures saves time and lends credibility to evaluation findings. The use of standard measures also allows for greater comparability of results between projects. Almost all evaluation instruments included in the resource list can be accessed online. Links are provided within the resource list; simply click on the name of the instrument within the table. The evaluation instrument resource list includes 77 validated instruments covering domains such as caregiver burden, depression, social support, dementia knowledge, self-efficacy, impact of problem behaviors, health status, cognitive function and risk/safety.

Also: Evaluation, assessments, evaluation, outcome, measure, quality, Alzheimer’s, Dementia, Services and supports, Outcomes, Impact, Evaluation, Validated, Instruments, Measures, Behavioral symptoms, Coping, Social Support, Risks, Safety, Stress, Unmet needs, Stigma, Quality of life, Knowledge, Activities of daily living, Caregiver burden, Depression, Caregiver strain, Cognitive screening, Caregiving, Self-efficacy

2018 NADRC:
Evaluating Dementia Services and Supports: Instrument Resource List

The NADRC developed the Evaluating Dementia Services and Supports: Instrument Resource List as a resource for dementia service providers, to help them identify appropriate and well-researched measures in support of their program evaluation plans. Choosing existing measures saves time and lends credibility to evaluation findings. The use of standard measures also allows for greater comparability of results between projects. Almost all evaluation instruments included in the resource list can be accessed online. Links are provided within the resource list; simply click on the name of the instrument within the table. The evaluation instrument resource list includes 77 validated instruments covering domains such as caregiver burden, depression, social support, dementia knowledge, self-efficacy, impact of problem behaviors, health status, cognitive function and risk/safety.

Also: Evaluation, assessments, evaluation, outcome, measure, quality, Alzheimer’s, Dementia, Services and supports, Outcomes, Impact, Evaluation, Validated, Instruments, Measures, Behavioral symptoms, Coping, Social Support, Risks, Safety, Stress, Unmet needs, Stigma, Quality of life, Knowledge, Activities of daily living, Caregiver burden, Depression, Caregiver strain, Cognitive screening, Caregiving, Self-efficacy

File 2018 NADRC: Evaluating Dementia Services and Supports: Instrument Resource List

2018 NADRC Webinar: March 13, 2018.
The Memory Ensemble™: Using Improvisation to Improve Quality of Life for Persons Living with Dementia

The Memory Ensemble™—a seven-year partnership between the Cognitive Neurology and Alzheimer’ Disease Center, Northwestern Feinberg School of Medicine and the Looking Glass Theatre Company—is an eight-week improvisational theater intervention program for people with early stage dementia. The mission of the Memory Ensemble is to improve the quality of life for people with dementia and their families; to investigate the benefits of this non-pharmacological intervention; and to translate these benefits to other communities.

This web seminar provides participants with a history of the Memory Ensemble; a brief review of the literature on the impact of the arts and improvisation on dementia and aging; a review of Memory Ensemble research findings to date; an introduction to foundational principles of improvisation and how they apply to work with persons with dementia; examples of activities in which participants can engage in multiple settings to improve quality of life for and with people living with dementia; and suggestions for further reading.

Presenters: Darby Morhardt and Christine Mary Dunford

The presentation can be accessed at: https://youtu.be/DXncdH7MWX0

PLEASE NOTE: Captions will automatically appear on the bottom of your screen.

PDF icon Dementia_and_the_Arts_Memory_Ensemble_Webinar_508.pdf

2018 NADRC Webinar: June 26, 2018
Finding the Balance: Enhancing Self-Efficacy in Persons with Dementia

Few attributes of personhood are more protected than self-determination, and few fears more troubling than the fear of losing independence. For people with dementia this can be particularly intense. Using stories taken from experience, the presenter illustrates why preserving autonomy and enhancing self-efficacy in people with dementia are important. The presentation also addresses ways professionals can support individuals living with dementia—and their families—in making decisions, even in the context of diminished decision-making capacity.

Presenter: Dr. Susan Wehry.

Webinar can be accessed at: https://youtu.be/UKfYJqG2ST0

PLEASE NOTE: Captions will automatically appear on the bottom of your screen.

Also: autonomy, self-efficacy, decision-making

PDF icon Finding the Balance -Enhancing Self-Efficacy in Persons Living with Dementia_508.pdf

2018 NADRC Webinar: July 31, 2018
Health Disparities in People Living with and at Risk for Dementia

In this web seminar, Andrea Garr provides an overview of the United Family Caregivers project in Milwaukee, Wisconsin and lessons learned from this project. She also discusses best practices when working in cross-cultural environments with African American caregivers. Dr. Lisa Barnes’ portion of the presentation focuses on disparities in Alzheimer’s dementia and cognitive impairment as it relates to African Americans. She discusses some of the most widely cited reasons for the disparities and describe findings on risk factors for cognitive decline from her cohort study, the Minority Aging Research Study.

Presenters: Dr. Lisa Barnes and Ms. Andrea Garr

Webinar can be accessed at: https://youtu.be/OihOTAxmenA

PLEASE NOTE: Captions will automatically appear on the bottom of your screen.

Also: Ethnic/Population Groups: minority group, groups, North American, Americans, Native, First Nation, Nations, African American, Arab, Arabs, Asian, Hispanic, Mexican, Latin, Inuit, Pacific Islander, Jews, Roma, LGTBQ , rural, frontier, women, diverse, underserved, diversity.

PDF icon NADRCslidesHealthDisparities_508.pdf

2018 NADRC Webinar: July 10, 2018
Disaster Preparedness for Community Dwelling Older Adults with Dementia and Their Caregivers

This web seminar provides a brief overview of risk factors that affect older adults’ and family caregivers’ preparation and response to a natural disaster. Characteristics of recent disasters in Northern and Southern California are summarized to highlight the vulnerabilities of older adults living in areas prone to wildfires and weather emergencies. The design, implementation and evaluation of a pilot program conducted at the VA Palo Alto Healthcare System that targets disaster preparedness of community-dwelling Veterans with dementia and their family caregivers are described. Also discussed are policy and planning implications of lessons learned in the pilot, as well as opportunities for promoting safety for community-dwelling older adults experiencing disasters.

Presenters: Nancy Oliva and Betty Wexler

Webinar can be accessed at: https://youtu.be/mF_UqnCI6jc

PLEASE NOTE: Captions will automatically appear on the bottom of your screen.

Also: Natural disaster, hurricane, mudslide, wildfire, floods, volcano eruption, emergency kit

PDF icon DisasterPreparednessForCommunityDwellingOlderAdultsWithDementia_508.pdf

2018 NADRC Webinar: January 30, 2018.
International Perspectives on Supporting People with Dementia and Caregivers

This web seminar provides international perspectives on supporting people with dementia and their caregivers. The presentation describes results from a survey on stigma given to people with dementia and caregivers from 54 countries.

The presentation also describes Scotland’s 10-year journey to improve dementia care and how Focus on Dementia is supporting the implementation of the dementia strategy in practice

Presenters: Nicole Batsch and Michelle Miller

The presentation can be accessed at: https://youtu.be/8klX9hvqJMs

PLEASE NOTE: Captions will automatically appear on the bottom of your screen.

Also: cognitive impairment, Alzheimer, Alzheimer’s disease, vascular, multi-infarct, frontotemporal lobar degeneration, FTD, aphasia primary progressive, AIDS, Lewy body disease, LBD, Pick, Picks disease, young onset, behavior

PDF icon InternationalPerspectivesOnPWDandCG_508.pdf

2018 NADRC Webinar: January 16, 2018
Frontotemporal Degeneration: Importance of Knowledge, Advocacy, & Support to Advance Quality Care (weblink)

This webinar provides an overview of frontotemporal degeneration (FTD) disorders and how they differ from Alzheimer’s disease and other dementias. Viewers will learn the symptoms, approaches to care and importance of support for the family system. An individual living with FTD and his wife will share their experiences and strategies for maintaining quality of life.

Participants in this web seminar will be able to:
• Identify three ways FTD differs from Alzheimer’s disease and other dementias;
• Identify the three main clinical presentations of FTD and their symptoms; and,
• Describe two positive approaches to care in FTD.

Presenters: Sharon S. Denny, Brandt and Marie Henderson

Webinar can be accessed at https://youtu.be/QuvEHzTgopg

PLEASE NOTE: Captions will automatically appear on the bottom of your screen.

Also: Dementia: cognitive impairment, Alzheimer, Alzheimer’s disease, vascular, multi-infarct, frontotemporal lobar degeneration, FTD, aphasia primary progressive, AIDS, Lewy body disease, LBD, Pick, Picks disease, behavior

PDF icon AFTDslides-Final-508.pdf

2018 NADRC Webinar: August 7, 2018
First Responder Training and Programs for People Living with Dementia

Creating safer communities for people living with dementia requires collaboration between law enforcement, local governments and health and human service organizations. In this session, Jessica Empeño of Alzheimer’s San Diego will share lessons learned through one such partnership, and offer attendees interested in working with local law enforcement departments and first responder units practical strategies for outreach, training and collaboration. Molly Schroeder from the Wisconsin Alzheimer’s Institute will discuss how the development of the Emergency Medical Services Visitor Program in Wisconsin is bridging gaps and connecting the elderly population to community based resources, with the goal of helping people with dementia who live alone remain safely in their homes as long as possible.

Presenters: Jessica Empeño and Molly Schroeder

Webinar can be accessed at: https://youtu.be/MTN86lNP7TU

PLEASE NOTE: Captions will automatically appear on the bottom of your screen.

Also: EMS, Fire Department, Police, live-alones, single person, widowhood, unmarried

PDF icon Final-LawEnforcementEMS-8-7-18_508.pdf

2018 NADRC Webinar: April 18, 2018
The Case for Palliative Care for People with Intellectual and Developmental Disabilities and Dementia

Pain management and palliative care are often difficult to access for people with both intellectual and developmental disabilities (IDD) and dementia. This web seminar uses recent work from the International Summit on Intellectual Disability and Dementia, which defined advanced dementia, proposed how palliative care services (including hospice) may be used and made recommendations for completing advanced directives and advance care planning prior to the extensive progression of dementia. Case examples will help illustrate the value of service integration efforts between intellectual disability and palliative care providers, specialized training for caregivers on end-of-life care and supports, and involvement of adults with intellectual disability early on in their advance care planning.

Presenters: Mary Hogan and Philip McCallion

Webinar can be accessed at: https://youtu.be/5wlw37T7evU

PLEASE NOTE: Captions will automatically appear on the bottom of your screen.

Also: Down syndrome, intellectual disability, development disorder

PDF icon PalliativeEOLCarePersonsIDDD_508.pdf

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