Webinars and Training

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2019 NADRC Webinar:
Financial Capacity for People with Dementia and Their Caregivers

The irreversible and progressive nature of dementia underscores the importance of planning for the future as soon as is practical for the person living with dementia and their caregivers or family. As dementia progresses, a person living with dementia will lose the ability to manage care and finances. Future planning for those affected by dementia can include identifying healthcare and supportive service options, determining how care will be funded and examining useful financial and legal resources. This web seminar will discuss key aspects of financial, legal, and healthcare planning that can help to ensure a more stable future for persons living with dementia, and their caregivers.

Presenters: Cindy Hounsell, Laurel Beedon

The presentation can be accessed at:
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Also: financial, legal, and healthcare planning

PDF icon Financial Capacity for People with Dementia and Their Caregivers

2019 NADRC Webinar:
Younger Onset Alzheimer’s Disease: Exploring the Emotional Experience and the Importance of Community

Living with Alzheimer’s disease is a challenge, changing life for both the person with the disease and their family. But what if someone diagnosed with this disease was in their early 60s, 50s or even as young as in their 30s? Younger onset Alzheimer’s disease affects people ages 65 years old or younger. Though the exact number of people with younger onset is unknown, the impact of living with Alzheimer’s in midlife is great. For more than 15 years, the Rush Alzheimer’s Disease Center in Chicago has offered Without Warning, a large support program for families living with younger onset Alzheimer’s disease. This presentation is informed by the experiences of Without Warning members. The web seminar will examine the emotional journey of younger onset Alzheimer’s disease and the importance of community in providing support.
Presenter: Susan Frick

The presentation coming soon
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Also: young onset, dementia

2019 NADRC Webinar:
Younger Onset Alzheimer’s Disease: Exploring the Emotional Experience and the Importance of Community

Living with Alzheimer’s disease is a challenge, changing life for both the person with the disease and their family. But what if someone diagnosed with this disease was in their early 60s, 50s or even as young as in their 30s? Younger onset Alzheimer’s disease affects people ages 65 years old or younger. Though the exact number of people with younger onset is unknown, the impact of living with Alzheimer’s in midlife is great. For more than 15 years, the Rush Alzheimer’s Disease Center in Chicago has offered Without Warning, a large support program for families living with younger onset Alzheimer’s disease. This presentation is informed by the experiences of Without Warning members. The web seminar will examine the emotional journey of younger onset Alzheimer’s disease and the importance of community in providing support.
Presenter: Susan Frick

The presentation coming soon
PLEASE NOTE: Captions will automatically appear on the bottom of your screen.

Also: young onset, dementia

PDF icon Younger Onset Alzheimer Disease: Experience and the Importance of Community

2019 NADRC Webinar:
Caregiving for people living with non-Alzheimer’s
In recent years, research on Alzheimer’s disease has increased significantly, but there has been less focus on other types of dementias. Because less is known about non-Alzheimer’s dementias, under- and misdiagnosis is common, treatment protocols are lacking and it is not clear how best to support people with these dementias and their caregivers. This web seminar will provide an overview of the three most common causes of dementia after Alzheimer’s disease, which include Lewy body dementia, frontotemporal degeneration and vascular dementia. Presenters will draw upon available information to describe caregiving for people living with these dementias. Special attention will be given to how caregiving for people with Lewy body dementia and frontotemporal degeneration may be different from Alzheimer’s disease. Case studies of caregiving for people with Lewy body dementia and frontotemporal degeneration will be highlighted.
Presenters: Sharon S. Denny; Sari Shuman; Angela Taylor

The presentation can be accessed at: https://youtu.be/MWMc6eoMlgE

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Also: vascular, multi-infarct, frontotemporal lobar degeneration, FTD, aphasia primary progressive, AIDS, Lewy body disease, LBD, Pick, Picks disease, young onset, behavior

PDF icon Caregiving for people living with non-Alzheimer’s

2019 NADRC Webinar (March 13, 2019)
Vascular Dementia: An Important Supporting Actor in the Story of Dementia
Cerebrovascular disease plays an important supporting role in many persons with mild cognitive impairment and dementia and often co-occurs with Alzheimer’s disease. This webinar will provide an overview of the role of cerebrovascular disease in late life cognitive impairment including risk factors and common misconceptions. The challenges associated with understanding the role of vascular risk factors, stroke history and stroke imaging findings will be explored. In addition, issues related to managing the symptoms of vascular dementia will be discussed. Participants will have the opportunity to ask their questions during the webinar.

Presenters: Dr. David Knopman

The presentation can be accessed at:
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Also: Alzheimer’s disease, vascular, multi-infarct, dementia, cognitive impairment

PDF icon Vascular Dementia: An Important Supporting Actor in the Story of Dementia

2018 NADRC:
Evaluating Dementia Services and Supports: Instrument Resource List

The NADRC developed the Evaluating Dementia Services and Supports: Instrument Resource List as a resource for dementia service providers, to help them identify appropriate and well-researched measures in support of their program evaluation plans. Choosing existing measures saves time and lends credibility to evaluation findings. The use of standard measures also allows for greater comparability of results between projects. Almost all evaluation instruments included in the resource list can be accessed online. Links are provided within the resource list; simply click on the name of the instrument within the table. The evaluation instrument resource list includes 77 validated instruments covering domains such as caregiver burden, depression, social support, dementia knowledge, self-efficacy, impact of problem behaviors, health status, cognitive function and risk/safety.

Also: Evaluation, assessments, evaluation, outcome, measure, quality, Alzheimer’s, Dementia, Services and supports, Outcomes, Impact, Evaluation, Validated, Instruments, Measures, Behavioral symptoms, Coping, Social Support, Risks, Safety, Stress, Unmet needs, Stigma, Quality of life, Knowledge, Activities of daily living, Caregiver burden, Depression, Caregiver strain, Cognitive screening, Caregiving, Self-efficacy

2018 NADRC:
Evaluating Dementia Services and Supports: Instrument Resource List

The NADRC developed the Evaluating Dementia Services and Supports: Instrument Resource List as a resource for dementia service providers, to help them identify appropriate and well-researched measures in support of their program evaluation plans. Choosing existing measures saves time and lends credibility to evaluation findings. The use of standard measures also allows for greater comparability of results between projects. Almost all evaluation instruments included in the resource list can be accessed online. Links are provided within the resource list; simply click on the name of the instrument within the table. The evaluation instrument resource list includes 77 validated instruments covering domains such as caregiver burden, depression, social support, dementia knowledge, self-efficacy, impact of problem behaviors, health status, cognitive function and risk/safety.

Also: Evaluation, assessments, evaluation, outcome, measure, quality, Alzheimer’s, Dementia, Services and supports, Outcomes, Impact, Evaluation, Validated, Instruments, Measures, Behavioral symptoms, Coping, Social Support, Risks, Safety, Stress, Unmet needs, Stigma, Quality of life, Knowledge, Activities of daily living, Caregiver burden, Depression, Caregiver strain, Cognitive screening, Caregiving, Self-efficacy

2018 NADRC:
Evaluating Dementia Services and Supports: Instrument Resource List

The NADRC developed the Evaluating Dementia Services and Supports: Instrument Resource List as a resource for dementia service providers, to help them identify appropriate and well-researched measures in support of their program evaluation plans. Choosing existing measures saves time and lends credibility to evaluation findings. The use of standard measures also allows for greater comparability of results between projects. Almost all evaluation instruments included in the resource list can be accessed online. Links are provided within the resource list; simply click on the name of the instrument within the table. The evaluation instrument resource list includes 77 validated instruments covering domains such as caregiver burden, depression, social support, dementia knowledge, self-efficacy, impact of problem behaviors, health status, cognitive function and risk/safety.

Also: Evaluation, assessments, evaluation, outcome, measure, quality, Alzheimer’s, Dementia, Services and supports, Outcomes, Impact, Evaluation, Validated, Instruments, Measures, Behavioral symptoms, Coping, Social Support, Risks, Safety, Stress, Unmet needs, Stigma, Quality of life, Knowledge, Activities of daily living, Caregiver burden, Depression, Caregiver strain, Cognitive screening, Caregiving, Self-efficacy

2018 NADRC:
Evaluating Dementia Services and Supports: Instrument Resource List

The NADRC developed the Evaluating Dementia Services and Supports: Instrument Resource List as a resource for dementia service providers, to help them identify appropriate and well-researched measures in support of their program evaluation plans. Choosing existing measures saves time and lends credibility to evaluation findings. The use of standard measures also allows for greater comparability of results between projects. Almost all evaluation instruments included in the resource list can be accessed online. Links are provided within the resource list; simply click on the name of the instrument within the table. The evaluation instrument resource list includes 77 validated instruments covering domains such as caregiver burden, depression, social support, dementia knowledge, self-efficacy, impact of problem behaviors, health status, cognitive function and risk/safety.

Also: Evaluation, assessments, evaluation, outcome, measure, quality, Alzheimer’s, Dementia, Services and supports, Outcomes, Impact, Evaluation, Validated, Instruments, Measures, Behavioral symptoms, Coping, Social Support, Risks, Safety, Stress, Unmet needs, Stigma, Quality of life, Knowledge, Activities of daily living, Caregiver burden, Depression, Caregiver strain, Cognitive screening, Caregiving, Self-efficacy

File 2018 NADRC: Evaluating Dementia Services and Supports: Instrument Resource List

2018 NADRC Webinar: March 13, 2018.
The Memory Ensemble™: Using Improvisation to Improve Quality of Life for Persons Living with Dementia

The Memory Ensemble™—a seven-year partnership between the Cognitive Neurology and Alzheimer’ Disease Center, Northwestern Feinberg School of Medicine and the Looking Glass Theatre Company—is an eight-week improvisational theater intervention program for people with early stage dementia. The mission of the Memory Ensemble is to improve the quality of life for people with dementia and their families; to investigate the benefits of this non-pharmacological intervention; and to translate these benefits to other communities.

This web seminar provides participants with a history of the Memory Ensemble; a brief review of the literature on the impact of the arts and improvisation on dementia and aging; a review of Memory Ensemble research findings to date; an introduction to foundational principles of improvisation and how they apply to work with persons with dementia; examples of activities in which participants can engage in multiple settings to improve quality of life for and with people living with dementia; and suggestions for further reading.

Presenters: Darby Morhardt and Christine Mary Dunford

The presentation can be accessed at: https://youtu.be/DXncdH7MWX0

PLEASE NOTE: Captions will automatically appear on the bottom of your screen.

PDF icon Dementia_and_the_Arts_Memory_Ensemble_Webinar_508.pdf

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