Reports and Toolkits

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Description File

2019 Alzheimer's/Dementia Caregiver Tip Sheets in English/Spanish/Chinese/Japanese

These fifteen Alzheimer's/Dementia plain language tip sheets were developed to assist caregivers in managing challenges associated with caregiving.
These fact sheets were developed by Alzheimer's Los Angeles as part of an AOA grant.
• Alzheimer’s Los Angeles plain language Caregiver Tip Sheets may be reproduced, co-branded, or both with the following restrictions:
Written permission needs to be granted by Alzheimer’s Los Angeles for co-branding. Contact Debra Cherry, PhD at dcherry@alzla.org (link sends e-mail).
• Alzheimer’s Los Angeles materials and resources cannot be sold in their original or modified form.
• The plain language tips sheets listed below may be found on the Alzheimer’s Los Angles webpage, here: https://www.alzheimersla.org/caregiver-tip-sheets/

New Files:
IDEA! Strategy Fact Sheet English/Spanish
Anger, Frustration & Fighting Fact Sheet English/Spanish
Anxiety Fact Sheet English/Spanish
Bathing Fact Sheet English/Spanish
Communication Fact Sheet English/Spanish
Driving Fact Sheet English/Spanish
Getting Lost Fact Sheet English/Spanish
Hallucinations Fact Sheet English/Spanish
Keeping Home Safe Fact Sheet English/Spanish
Medications Fact Sheet English/Spanish
Paranoia Fact Sheet English/Spanish
Repeating Fact Sheet English/Spanish
Resistance Fact Sheet English/Spanish
Sundowning Fact Sheet English/Spanish
Toileting Fact Sheet English/Spanish

Anger, Frustration & Fighting Fact Sheet Japanese
Bathing Fact Sheet Japanese
Communication Fact Sheet Japanese
Driving Fact Sheet Japanese
Getting Lost Fact Sheet Japanese
Hallucinations Fact Sheet Japanese
Keeping Home Safe Fact Sheet Japanese
Medications Fact Sheet Japanese
Paranoia Fact Sheet Japanese
Repeating Fact Sheet Japanese
Sundowning Fact Sheet Japanese
Toileting Fact Sheet Japanese

IDEA! Strategy Fact Sheet Chinese
Anger, Frustration & Fighting Fact Sheet Chinese
Anxiety Fact Sheet Chinese
Bathing Fact Sheet Chinese
Communication Fact Sheet Chinese
Driving Fact Sheet Chinese
Getting Lost Fact Sheet Chinese
Hallucinations Fact Sheet Chinese
Keeping Home Safe Fact Sheet Chinese
Medications Fact Sheet Chinese
Paranoia Fact Sheet Chinese
Repeating Fact Sheet Chinese
Resistance Fact Sheet Chinese
Sundowning Fact Sheet Chinese
Toileting Fact Sheet Chinese

Also: Behavior: symptom, symptoms, mechanisms, moderate, early-stage, late-stage, non-pharmacological, non-pharmacologic, challenging

2019 Alzheimer's/Dementia Caregiver Tip Sheets in English/Spanish/Chinese/Japanese

These fifteen Alzheimer's/Dementia plain language tip sheets were developed to assist caregivers in managing challenges associated with caregiving.
These fact sheets were developed by Alzheimer's Los Angeles as part of an AOA grant.
• Alzheimer’s Los Angeles plain language Caregiver Tip Sheets may be reproduced, co-branded, or both with the following restrictions:
Written permission needs to be granted by Alzheimer’s Los Angeles for co-branding. Contact Debra Cherry, PhD at dcherry@alzla.org (link sends e-mail).
• Alzheimer’s Los Angeles materials and resources cannot be sold in their original or modified form.
• The plain language tips sheets listed below may be found on the Alzheimer’s Los Angles webpage, here: https://www.alzheimersla.org/caregiver-tip-sheets/

New Files:
IDEA! Strategy Fact Sheet English/Spanish
Anger, Frustration & Fighting Fact Sheet English/Spanish
Anxiety Fact Sheet English/Spanish
Bathing Fact Sheet English/Spanish
Communication Fact Sheet English/Spanish
Driving Fact Sheet English/Spanish
Getting Lost Fact Sheet English/Spanish
Hallucinations Fact Sheet English/Spanish
Keeping Home Safe Fact Sheet English/Spanish
Medications Fact Sheet English/Spanish
Paranoia Fact Sheet English/Spanish
Repeating Fact Sheet English/Spanish
Resistance Fact Sheet English/Spanish
Sundowning Fact Sheet English/Spanish
Toileting Fact Sheet English/Spanish

Anger, Frustration & Fighting Fact Sheet Japanese
Bathing Fact Sheet Japanese
Communication Fact Sheet Japanese
Driving Fact Sheet Japanese
Getting Lost Fact Sheet Japanese
Hallucinations Fact Sheet Japanese
Keeping Home Safe Fact Sheet Japanese
Medications Fact Sheet Japanese
Paranoia Fact Sheet Japanese
Repeating Fact Sheet Japanese
Sundowning Fact Sheet Japanese
Toileting Fact Sheet Japanese

IDEA! Strategy Fact Sheet Chinese
Anger, Frustration & Fighting Fact Sheet Chinese
Anxiety Fact Sheet Chinese
Bathing Fact Sheet Chinese
Communication Fact Sheet Chinese
Driving Fact Sheet Chinese
Getting Lost Fact Sheet Chinese
Hallucinations Fact Sheet Chinese
Keeping Home Safe Fact Sheet Chinese
Medications Fact Sheet Chinese
Paranoia Fact Sheet Chinese
Repeating Fact Sheet Chinese
Resistance Fact Sheet Chinese
Sundowning Fact Sheet Chinese
Toileting Fact Sheet Chinese

Also: Behavior: symptom, symptoms, mechanisms, moderate, early-stage, late-stage, non-pharmacological, non-pharmacologic, challenging

2019 Alzheimer's/Dementia Caregiver Tip Sheets in English/Spanish/Chinese/Japanese

These fifteen Alzheimer's/Dementia plain language tip sheets were developed to assist caregivers in managing challenges associated with caregiving.
These fact sheets were developed by Alzheimer's Los Angeles as part of an AOA grant.
• Alzheimer’s Los Angeles plain language Caregiver Tip Sheets may be reproduced, co-branded, or both with the following restrictions:
Written permission needs to be granted by Alzheimer’s Los Angeles for co-branding. Contact Debra Cherry, PhD at dcherry@alzla.org (link sends e-mail).
• Alzheimer’s Los Angeles materials and resources cannot be sold in their original or modified form.
• The plain language tips sheets listed below may be found on the Alzheimer’s Los Angles webpage, here: https://www.alzheimersla.org/caregiver-tip-sheets/

New Files:
IDEA! Strategy Fact Sheet English/Spanish
Anger, Frustration & Fighting Fact Sheet English/Spanish
Anxiety Fact Sheet English/Spanish
Bathing Fact Sheet English/Spanish
Communication Fact Sheet English/Spanish
Driving Fact Sheet English/Spanish
Getting Lost Fact Sheet English/Spanish
Hallucinations Fact Sheet English/Spanish
Keeping Home Safe Fact Sheet English/Spanish
Medications Fact Sheet English/Spanish
Paranoia Fact Sheet English/Spanish
Repeating Fact Sheet English/Spanish
Resistance Fact Sheet English/Spanish
Sundowning Fact Sheet English/Spanish
Toileting Fact Sheet English/Spanish

Anger, Frustration & Fighting Fact Sheet Japanese
Bathing Fact Sheet Japanese
Communication Fact Sheet Japanese
Driving Fact Sheet Japanese
Getting Lost Fact Sheet Japanese
Hallucinations Fact Sheet Japanese
Keeping Home Safe Fact Sheet Japanese
Medications Fact Sheet Japanese
Paranoia Fact Sheet Japanese
Repeating Fact Sheet Japanese
Sundowning Fact Sheet Japanese
Toileting Fact Sheet Japanese

IDEA! Strategy Fact Sheet Chinese
Anger, Frustration & Fighting Fact Sheet Chinese
Anxiety Fact Sheet Chinese
Bathing Fact Sheet Chinese
Communication Fact Sheet Chinese
Driving Fact Sheet Chinese
Getting Lost Fact Sheet Chinese
Hallucinations Fact Sheet Chinese
Keeping Home Safe Fact Sheet Chinese
Medications Fact Sheet Chinese
Paranoia Fact Sheet Chinese
Repeating Fact Sheet Chinese
Resistance Fact Sheet Chinese
Sundowning Fact Sheet Chinese
Toileting Fact Sheet Chinese

Also: Behavior: symptom, symptoms, mechanisms, moderate, early-stage, late-stage, non-pharmacological, non-pharmacologic, challenging

2019 Alzheimer's/Dementia Caregiver Tip Sheets in English/Spanish/Chinese/Japanese

These fifteen Alzheimer's/Dementia plain language tip sheets were developed to assist caregivers in managing challenges associated with caregiving.
These fact sheets were developed by Alzheimer's Los Angeles as part of an AOA grant.
• Alzheimer’s Los Angeles plain language Caregiver Tip Sheets may be reproduced, co-branded, or both with the following restrictions:
Written permission needs to be granted by Alzheimer’s Los Angeles for co-branding. Contact Debra Cherry, PhD at dcherry@alzla.org (link sends e-mail).
• Alzheimer’s Los Angeles materials and resources cannot be sold in their original or modified form.
• The plain language tips sheets listed below may be found on the Alzheimer’s Los Angles webpage, here: https://www.alzheimersla.org/caregiver-tip-sheets/

New Files:
IDEA! Strategy Fact Sheet English/Spanish
Anger, Frustration & Fighting Fact Sheet English/Spanish
Anxiety Fact Sheet English/Spanish
Bathing Fact Sheet English/Spanish
Communication Fact Sheet English/Spanish
Driving Fact Sheet English/Spanish
Getting Lost Fact Sheet English/Spanish
Hallucinations Fact Sheet English/Spanish
Keeping Home Safe Fact Sheet English/Spanish
Medications Fact Sheet English/Spanish
Paranoia Fact Sheet English/Spanish
Repeating Fact Sheet English/Spanish
Resistance Fact Sheet English/Spanish
Sundowning Fact Sheet English/Spanish
Toileting Fact Sheet English/Spanish

Anger, Frustration & Fighting Fact Sheet Japanese
Bathing Fact Sheet Japanese
Communication Fact Sheet Japanese
Driving Fact Sheet Japanese
Getting Lost Fact Sheet Japanese
Hallucinations Fact Sheet Japanese
Keeping Home Safe Fact Sheet Japanese
Medications Fact Sheet Japanese
Paranoia Fact Sheet Japanese
Repeating Fact Sheet Japanese
Sundowning Fact Sheet Japanese
Toileting Fact Sheet Japanese

IDEA! Strategy Fact Sheet Chinese
Anger, Frustration & Fighting Fact Sheet Chinese
Anxiety Fact Sheet Chinese
Bathing Fact Sheet Chinese
Communication Fact Sheet Chinese
Driving Fact Sheet Chinese
Getting Lost Fact Sheet Chinese
Hallucinations Fact Sheet Chinese
Keeping Home Safe Fact Sheet Chinese
Medications Fact Sheet Chinese
Paranoia Fact Sheet Chinese
Repeating Fact Sheet Chinese
Resistance Fact Sheet Chinese
Sundowning Fact Sheet Chinese
Toileting Fact Sheet Chinese

Also: Behavior: symptom, symptoms, mechanisms, moderate, early-stage, late-stage, non-pharmacological, non-pharmacologic, challenging

2019 Alzheimer's/Dementia Caregiver Tip Sheets in English/Spanish/Chinese/Japanese

These fifteen Alzheimer's/Dementia plain language tip sheets were developed to assist caregivers in managing challenges associated with caregiving.
These fact sheets were developed by Alzheimer's Los Angeles as part of an AOA grant.
• Alzheimer’s Los Angeles plain language Caregiver Tip Sheets may be reproduced, co-branded, or both with the following restrictions:
Written permission needs to be granted by Alzheimer’s Los Angeles for co-branding. Contact Debra Cherry, PhD at dcherry@alzla.org (link sends e-mail).
• Alzheimer’s Los Angeles materials and resources cannot be sold in their original or modified form.
• The plain language tips sheets listed below may be found on the Alzheimer’s Los Angles webpage, here: https://www.alzheimersla.org/caregiver-tip-sheets/

New Files:
IDEA! Strategy Fact Sheet English/Spanish
Anger, Frustration & Fighting Fact Sheet English/Spanish
Anxiety Fact Sheet English/Spanish
Bathing Fact Sheet English/Spanish
Communication Fact Sheet English/Spanish
Driving Fact Sheet English/Spanish
Getting Lost Fact Sheet English/Spanish
Hallucinations Fact Sheet English/Spanish
Keeping Home Safe Fact Sheet English/Spanish
Medications Fact Sheet English/Spanish
Paranoia Fact Sheet English/Spanish
Repeating Fact Sheet English/Spanish
Resistance Fact Sheet English/Spanish
Sundowning Fact Sheet English/Spanish
Toileting Fact Sheet English/Spanish

Anger, Frustration & Fighting Fact Sheet Japanese
Bathing Fact Sheet Japanese
Communication Fact Sheet Japanese
Driving Fact Sheet Japanese
Getting Lost Fact Sheet Japanese
Hallucinations Fact Sheet Japanese
Keeping Home Safe Fact Sheet Japanese
Medications Fact Sheet Japanese
Paranoia Fact Sheet Japanese
Repeating Fact Sheet Japanese
Sundowning Fact Sheet Japanese
Toileting Fact Sheet Japanese

IDEA! Strategy Fact Sheet Chinese
Anger, Frustration & Fighting Fact Sheet Chinese
Anxiety Fact Sheet Chinese
Bathing Fact Sheet Chinese
Communication Fact Sheet Chinese
Driving Fact Sheet Chinese
Getting Lost Fact Sheet Chinese
Hallucinations Fact Sheet Chinese
Keeping Home Safe Fact Sheet Chinese
Medications Fact Sheet Chinese
Paranoia Fact Sheet Chinese
Repeating Fact Sheet Chinese
Resistance Fact Sheet Chinese
Sundowning Fact Sheet Chinese
Toileting Fact Sheet Chinese

Also: Behavior: symptom, symptoms, mechanisms, moderate, early-stage, late-stage, non-pharmacological, non-pharmacologic, challenging

ACL Issue Brief (2015):
Responding to the Wandering and Exit-seeking Behaviors of People with Dementia

Discusses person-centered approaches to meeting people’s needs and evidence about the effectiveness of person-centered services for people with dementia.

Summarizes evidence and practice recommendations related to implementing person-centered care in the context of responding to wandering and exit-seeking behaviors.

Provides an appendix with techniques that Administration for Community Living (ACL) dementia grantees know about or have used to address wandering concerns.

Also: Behavior: symptom, symptoms, mechanisms, moderate, early-stage, late-stage, non-pharmacological, non-pharmacologic

PDF icon Wandering Exit Seeking Issue Brief (May 2015)

Alliance for Aging Research, AOA, & the MetLife Foundation (2012):
White Paper: Translating Innovation to Impact: Evidence-based interventions to support people with Alzheimer’s disease and their caregivers at home and in their communities.

Research conducted in the United States shows that more than forty non-pharmacological treatments and care practices have positive effects for some people with Alzheimer’s or other dementias who live in the community and some family caregivers. As discussed in this white paper, all of these treatments and care practices have been tested in randomized controlled trials (RCTs), the gold standard for rigorous scientific research. More non-pharmacological treatments and care practices are in various stages of development and evaluation. Much of this research has been conducted with funding support from the National Institute on Aging and other National Institutes of Health partners, including the National Institute on Nursing Research. In just the three months following the June 2012 meeting, RCTs conducted in the U.S. have shown positive effects for three new non-pharmacological treatments and care practices for people with these conditions and their family caregivers.

Also: Non-pharmacological therapies: acupuncture, aromatherapy, art therapy, dance, music, play, horticultural, laughter, meditation, therapy therapeutic touch, Tai Ji/Chi, yoga,

PDF icon White Paper (PDF, 949 KB)

Alzheimer's Association (2009):
Considerations for Those Who Live Alone

General guidelines for working with individuals with dementia who live alone.
Excerpted from the Alzheimer's Association Dementia Care Practice Recommendations

Also: Live Alone: live-alones, single person, widowhood, unmarried

PDF icon Considerations_For_Those_Who_Live_Alone.pdf

Alzheimer's Disease Initiative - Specialized Supportive Services (ADI-SSS) Fact Sheet (January 2018)

Contains program description, map of US showing where programs are located and contact information

PDF icon Alzheimer's Disease Initiative - Specialized Supportive Services (ADI-SSS) Fact Sheet (January 2018)

Alzheimer's Disease Supportive Services Program (ADSSP) Fact Sheet (January 2018)

Includes Program Description, map of US showing where grants are and contact information.

PDF icon Alzheimer's Disease Supportive Services Program (ADSSP) Fact Sheet (January 2018)

Developed by the Duke Family Support Program (2002):
Can a Person with Alzheimer’s Live Alone?

A list of questions that may guide decisions about the safety of someone with a memory disorder living alone.

Also: Live Alone: live-alones, single person, widowhood, capacity, competency

PDF icon Can a Person with Alzheimer’s Live Alone?

Developed by the Duke Family Support Program (2002):
Fraud Protection for Elders Living Alone

Suggested ways to protect elders at risk of fraud who live alone.

Also: Also: Live Alone: live-alones, single person, widowhood, capacity, financial competency

PDF icon PWD_Living_Alone_Fraud_Protection.pdf

NADRC 2018:
Training Resources Compendium for Dementia Care Providers and Volunteers

The training resources address dementia capability, diverse populations and dementia, people with intellectual and developmental disabilities and dementia, behavioral symptom management, people who live alone with dementia and more. The resources were reviewed by the National Alzheimer’s and Dementia Resource Center. They are free of charge and come from a variety of sources including government, academia, Alzheimer’s disease centers, geriatric workforce education programs, and others.

Also: professionals, volunteers, dementia care providers, dementia, Alzheimer’s disease, education, curriculum, health professional, program, programs, staff

NADRC 2018:
Training Resources Compendium for Dementia Care Providers and Volunteers

The training resources address dementia capability, diverse populations and dementia, people with intellectual and developmental disabilities and dementia, behavioral symptom management, people who live alone with dementia and more. The resources were reviewed by the National Alzheimer’s and Dementia Resource Center. They are free of charge and come from a variety of sources including government, academia, Alzheimer’s disease centers, geriatric workforce education programs, and others.

Also: professionals, volunteers, dementia care providers, dementia, Alzheimer’s disease, education, curriculum, health professional, program, programs, staff

File 2018 NADRC: Training Resources Compendium for Dementia Care Providers and Volunteers

NADRC 2019
Article Resource List on Dementia Care and Services: September 2019

The National Alzheimer’s and Dementia Resource Center has prepared this list of recently published articles covering a range of subjects of interest to grantees and partners. This list does not represent a comprehensive examination of the recent literature in any one subject or topic. Links to the publishers’ websites have been included if an article is available for purchase or for free download.

NADRC 2019
Article Resource List on Dementia Care and Services: September 2019

The National Alzheimer’s and Dementia Resource Center has prepared this list of recently published articles covering a range of subjects of interest to grantees and partners. This list does not represent a comprehensive examination of the recent literature in any one subject or topic. Links to the publishers’ websites have been included if an article is available for purchase or for free download.

NADRC 2019
Article Resource List on Dementia Care and Services: September 2019

The National Alzheimer’s and Dementia Resource Center has prepared this list of recently published articles covering a range of subjects of interest to grantees and partners. This list does not represent a comprehensive examination of the recent literature in any one subject or topic. Links to the publishers’ websites have been included if an article is available for purchase or for free download.

NADRC 2019
Article Resource List on Dementia Care and Services: September 2019

The National Alzheimer’s and Dementia Resource Center has prepared this list of recently published articles covering a range of subjects of interest to grantees and partners. This list does not represent a comprehensive examination of the recent literature in any one subject or topic. Links to the publishers’ websites have been included if an article is available for purchase or for free download.

NADRC 2019
Article Resource List on Dementia Care and Services: September 2019

The National Alzheimer’s and Dementia Resource Center has prepared this list of recently published articles covering a range of subjects of interest to grantees and partners. This list does not represent a comprehensive examination of the recent literature in any one subject or topic. Links to the publishers’ websites have been included if an article is available for purchase or for free download.

File 2019 September Article Resource List

National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers:
Report to the National Advisory Council on Alzheimer’s Research, Care, and Services (April 27, 2018)
This is the final report associated with the Research Summit on Dementia Care and was authored by the Summit co-chairs, Laura Gitlin and Katie Maslow and the federal lead for the Summit, Rohini Khillan.
This final Summit report includes the results and recommendations of the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care) held on the National Institutes of Health (NIH) campus on October 16-17, 2017. The Summit complements the National Institute on Aging's (NIA) Alzheimer's Disease Research Summits and the National Institute for Neurological Disease and Stroke (NINDS) Alzheimer's Disease Related Dementias Summits, and follows the same general structure. These conferences are coordinated planning efforts that respond to the National Plan to Address Alzheimer's Disease, first released in 2012 and now updated annually. Following the example of the earlier NIA and NINDS Summits, this Summit was intended to set national research recommendations that reflect critical scientific priorities for research on care and services for persons with dementia and their families. The Steering Committee and organizers of this Summit solicited input from nationally and internationally recognized experts and researchers, and other public and private sector stakeholders, to develop prioritized recommendations. The recommendations included in this report will help guide investments by a number of public and private stakeholders in the field of care, services, and supports, and will provide the structure for future summits.

The report can be found at the following link: https://aspe.hhs.gov/system/files/pdf/259156/FinalReport.pdf

Profiles of all of the funded 2017 ADSSP projects, including grantee contact information.

Also: grant profile, grant profiles, descriptions

File 2017 Alzheimer's Disease Supportive Services Program (ADSSP) Project Profiles

Profiles of each of the eleven ADI-SSS projects funded in September 2017, including grantee contact information.

Also: grant profiles, grant profile, descriptions,

File Alzheimer's Disease Initiative - Specialized Supportive Services (ADI-SSS) Program Profiles

The Administration on Aging (AoA) within the Administration for Community Living (ACL) commissioned a supplemental issue of Generations through its National Alzheimer’s and Dementia Resource Center (NADRC) in an effort to advance the establishment and enhancement of dementia-capable home and community-based systems. It is titled Supporting People with Dementia and Their Caregivers in the Community. The Generations supplement is comprised of 18 articles authored by experts in a broad range of dementia care and advocacy topics.
This special issue is dedicated to the delivery of information on a range of topics of significance for people living with dementia and their caregivers. Intended to put dementia care in context, this issue provides insight into evidence-based interventions, person-centered/directed dementia care, underserved and vulnerable populations, and other topics for providing effective home and community-based services.

The Generations publication is FREE and can be accessed at: http://viewer.epageview.com/Viewer.aspx?docid=7105eba4-7097-4def-8391-a7... .

University of Iowa (2004):
People with Dementia Living Alone Risk Assessment
2004
Assessment tool to assess level of risk of people with dementia who are living alone in the community.
Adapted from an assessment tool developed by the University of Iowa School of Nursing.

Also: Live Alone: live-alones, single person, widowhood, unmarried; Decision Making: autonomy, capacity, care planning, competency, ethics, financial capacity, informed consent, shared decision-making, care management

PDF icon People with Dementia Living Alone Risk Assessment

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